As explained Rafalsky, the project is the first step towards preparing a comprehensive and detailed program that should be adopted by the government until the end of the year. On Thursday the draft law on support of pregnant women and their families “For life” to borrow from the parliamentary Commission on Social Policy and Family.
before the Parliament, a conference was organised on the theme of the project, which envisages, in particular, that in connection with the birth of a living child with severe and irreversible breach or an incurable disease threatening the life, which originated in prenatalnym the period of development or during birth, are eligible for a lump sum payment in the amount of 4 thousand UAH. rubles.
Press Secretary of the government on the project “For life”: this is a comprehensive program of care for mothers
“This is the moment when the family can not be without the financial means“
Rafalsky apelowała to “the proposal, on which the media concentrated, (…) those good intentions, the solution is not to destroy the manufacture of some of the second floor.”
you are convinced that the offer of one-time support needs to be provide monetary assistance in the most difficult moment, in which a family may be deprived of funds and needs them the most. She added that at a time like this we need a comprehensive assistance, but also need the money to pay for a taxi or drugs. – This is the moment when the family can not be without the financial means, the Minister stated.
(the Film – “no amount of money will lessen the suffering of families which give birth to a sick child.” Source: TVP INFO)
in Addition to support
the government Commissioner for people with disabilities, Deputy Minister of family Krzysztof Michałkiewicz noted that the program is “For life” is valid, so that to support koordiniruyutsya, taking into account the specific problems of the child, mother, family with a sick child. In accordance with the project, to coordinate the support provided by the assistant of the family – it will create a catalog of all possible assistance and act “to those concerned, in order to benefit from support.”
when Asked how the resort have listed the amount of the disposable support, he replied: “We had estimates of how many children are born with the Ministry of Health, and at the same time from the back of the head we have a budget, and it was kind of mediocrity between those needs that we know of, and opportunities budget cuts”.
Dopytywany about the cost, the law and programs, Michałkiewicz said, “It’s two things: we are talking about a cost of the law, and there is 152 million rubles, and we are talking about the price of the program, which currently occurs here, we will negotiate with the Minister of Finance that the funds for the implementation of this program in the first year were in reserve and were possibly for use during the year”.
“Extremely difficult task”
As explained Rafalsky, haste in the work on the draft law has not led to the fact that “the Prime Minister wanted to have the law for a month, only if this law is in force since the new year – it should be a source of funding, work is continuing on the budget for 2017″. – We realize that we made a very difficult task, not only because work on the program of the various agencies that must coordinate their actions, but primarily because the project is available for those families in which the birth or who know that to give birth you have a child diagnosed with severe, irreversible, incurable disease,” she said.
she Noted that currently, the help for families with children with disabilities is insufficient and scattered. She added that the program should be clearly addressed to those families whose children have no chance for a cure is to have access to rehabilitation, health, research prenatal.
“Family”
About the importance of support for families, said Deputy health Minister Vasyl Pinkas. – The family will not be alone. Mother, who will have knowledge of a possible defect, your child will not be the same; it will have the right of choice, he said. He added that he is sure it will be full access to study prenatal care and psychological support at every stage – from the moment a woman learns about the illness of your child until his adulthood. Pinkas also talked about the access to prenatal and hospice coordination of care – at the level of POS. – We want to pay the doctor POSES, the midwives of the environment ( … ) to have coordinated the events, he said.
According to him, the programme which the government wants to take until the end of the year, and part of which is the project “For life”, the family will have manual OS and bezlimitowe access to medical supplies that you need. – Also will be coordinated, of course, to certain limits kwotowych and we want the kids to not have had any problems, at least with access to pieluchomajtek and many other events necessary to implement health benefits – said Deputy Minister of health. – It has the money, he added.
Michałkiewicz reminded that, in addition to the team, which is preparing a program “For life” is a team which is used to prepare solutions for families with people with disabilities. He added that some things have managed to work out, even procedowane or in preparation.
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